Senior Voice -

By Dimitra Lavrakas
For Senior Voice 

Bonanza for at-home medical studies

New medical records business shares health records

 

November 1, 2022 | View PDF



PicnicHealth is a business with a new approach to medical studies. It will take the information from your medical history through an online portal and share it with researchers. All of your records, no matter how many times you move, will be organized for your, your doctors’ and researchers’ convenience.

The researchers will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking “Send Records” at the top of your PicnicHealth timeline.

Here are four current PicnicHealth studies – they are not clinical trials – that can be participated in remotely from your own home.

1. Immunoglobulin A Nephropathy (IgAN) research is lacking, so PicnicHealth is teaming up with Clinical Connection to encourage research and optimize care for those living with IgAN.

In this research, the company is only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the U.S. are being treated and why the disease looks different in different people.

Anyone diagnosed with Berger’s Disease and who has received medical care for it in the past seven years is eligible. After signing up, you will receive $200 and a free lifetime membership to PicnicHealth that gives you control and access to your complete medical history and records

Go to https://bit.ly/3So8i3p.

2. Studying Huntington’s disease to find out where there are gaps in current treatments where new cures could be developed.

Anyone who has been diagnosed with Huntington’s disease is eligible for this study where you will help researchers determine who is most at risk of side effects from certain medications and how effective new treatments are over time. Anyone who has received medical care in the U.S. for this disease is eligible.

By signing up for this study, you agree to share your medical records with medical researchers.

After you sign up, you will receive $200 and a free lifetime membership to PicnicHealth.

Go to https://bit.ly/3BZrHSN.

3. Share records to help evaluate Alzheimer’s research and treatment. This study aims to help family and patients keep track of medical records while contributing to important research. Questions to be answered are: Who is most at risk of side effects from certain medications; how effective are new treatments over time; and what are the gaps in current treatments where new cures could be developed.

A family member or a loved one diagnosed with Alzheimer’s, and who is over 50 years old, and has received medical care in the U.S. is eligible.

After you sign up, you will receive $25 and a free lifetime membership to PicnicHealth.

Go to https://bit.ly/3E3XDXR.

4. Idiopathic Thrombocytopenic Purpura (ITP) is a blood disorder characterized by an abnormal decrease in the number of platelets in the blood. Platelets are cells in the blood that help stop bleeding, and a decrease can result in easy bruising, bleeding gums and internal bleeding.

“Idiopathic” means the cause is unknown; “thrombocytopenia” means a decreased number of platelets in the blood; and “purpura” refers to the purple discoloring of the skin, as with a bruise.

Researchers hope to learn if risk factors for developing ITP can be better determined; who experiences bleeding events and how can it be prevented; who benefits the most from early ITP treatments; and when is the best time to start them.

You are eligible if you have been diagnosed with ITP and if you received medical treatment in the United States.

You will also receive $150 and a free lifetime membership to PicnicHealth.

Go to https://bit.ly/3fhCXkM.

 
 

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